INSIDER
FDA advisers vote against experimental ALS treatment pushed by patients
Read full article: FDA advisers vote against experimental ALS treatment pushed by patientsFederal health advisers have voted overwhelmingly against recommending approval of an experimental treatment for Lou Gehrig's disease, the fatal muscle-wasting disease.
Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it works
Read full article: Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it worksThe Food and Drug Administration meets this week to consider a much-debated treatment for Lou Gehrig’s disease.
Active Against ALS brings back Box Car Derby to Ann Arbor
Read full article: Active Against ALS brings back Box Car Derby to Ann ArborActive Against ALS is partnering with Phi Delta Theta, a fraternity at the University of Michigan, to bring back a fundraising Box Car Derby to downtown Ann Arbor on April 10.
Pressured by patients, FDA reviews ALS drug with modest data
Read full article: Pressured by patients, FDA reviews ALS drug with modest dataThe Food and Drug Administration meets next week to review a closely watched drug for ALS, or Lou Gehrig’s disease, following months of lobbying by patient groups and congressional lawmakers.
Metro Detroit hospice helps track down special gift for dying father to give to his son
Read full article: Metro Detroit hospice helps track down special gift for dying father to give to his sonSeasons Hospice in Metro Detroit went above and beyond the call of duty to grant a young father’s wish. Scott LaPointe is a 42-year-old father with Lou Gehrig’s disease, or amyotrophic lateral sclerosis. He’s in home hospice care because his body is failing him, but he won’t fail his 11-year-old son, Alex. She mentioned her search to LaPointe’s music therapist with Seasons Hospice and she managed to track down a copy. Seasons Hospice Foundation, which grants wish fulfillment, had a link with the publisher and a week later, therapist Jennifer Fromius handed LaPointe what he wanted to leave his son.
Larry Falivena has ALS, and he's visiting all 30 MLB ballparks
Read full article: Larry Falivena has ALS, and he's visiting all 30 MLB ballparksLarry Falivena is spending three months traveling to MLB ballparks in an RV, and his family has joined him. But for Larry Falivena, a husband and father of two, accomplishing that goal is about much more than the game. A nod to "Iron Horse" Lou GehrigIn February, Larry and Shana Falivena met with the CEO of the ALS Association, Calaneet Balas. Gehrig, dubbed the "Iron Horse" for playing 2,130 consecutive games, retired from baseball in 1939 after being diagnosed with ALS. "This mission is more important than being comfortable and safe and protected in our own little bubble in Apex," Shana Falivena said to CNN.